Nathan Kibler ([info]volpane) wrote,
@ 2009-02-01 10:51:00
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Entry tags:lewis carroll, medical, neurology

Hunting My Inner Snark
Henry Holiday's illustration of the Banker and the Bellman from Wikipedia


"In the midst of the word he was trying to say

In the midst of his laughter and glee

He had softly and suddenly vanished away

For the Snark was a Boojum, you see."

--final stanza of Lewis Carroll's The Hunting of the Snark

On January 2, 2009 I found myself in the emergency room at St. Joseph's Hospital in Bellingham. The events leading up to my visit are absurd and out of character for me. My doctors are still unsure of what happened although in my mind many of the events remain clear. I was released from the emergency room after no less than two hours of the usual poking and prodding with the fairly cryptic diagnosis of "possible petit mal seizure".

Bruce and I were visiting with friends in anticipation of the New Year at a cabin reserved at a small state campground near the Canadian border. This was the third year in a row that we'd visited with these friends for the New Year, so the setting was familiar and comfortable. What was unfamiliar was my state of mind and behavior over the few days we were there.

Basically, during our visit I became gradually less coherent and responsive. Often I had a glazed look in my eyes and my attention would drift. When Bruce would check with me I assured him I was fine and in good spirits, but I was slow to respond and spent most of the time either sitting or sleeping. I had intended to spend time writing but had no interest or attention to do this. At times I would carry on conversations, but Bruce and our friends were having trouble following my train of thinking as I was talking about Quantum Physics and parallel universes. At one point I believed I was moving between parallel universes whenever someone would cough or the fire in the fireplace sparked.

Perhaps my behavior was most troubling when I would use the restroom. Sometimes I would forget what I was doing and Bruce would have to retrieve me, often finding me either sitting in the middle of the room or bent over at the waist in a yoga pose. A few times I asked him what I was doing there. For the remaining days I continued being very docile.

I had not taken any recreational drugs and while I did have a single alcoholic drink and half a beer on the first night we arrived at the campgrounds, I didn't drink any more and haven't had any alcohol since. The weather was snowy and while each day there were moments of thaw, the heavy and frequent flurries of snow pretty much kept us indoors the whole time. New Year's Eve was fairly calm and I was fairly lucid enough to participate celebrating with our friends and the next day I was ready to return home and said as much to Bruce.

Unfortunately the road out of the campground was too icy and our van became stuck in the ditch, forcing us to stay another night at the cabin. Friday, January 2nd, everyone was ready to leave and while our friends were packing up, all I could do was sit in a chair not really aware of what was going on around me. At some point I lost control of myself, and when coming in to retrieve me Bruce discovered me sitting in my own urine. While a friend called the emergency vehicle, he changed me into some clean clothes.

By this time, although I remember much of what was going on around me, I was convinced I was participating in an initiation or shamanic quest. I remember thinking that everyone who I made eye contact with had violet eyes or bluish halos around their iris, and strangely I was not too disturbed by this hallucination. At one point I was given a visual/motor control test where I was asked to look at the EMT's finger off to my right and then to the left, but I couldn't see anything out of my left eye, although I wasn't able to communicate this.

Bruce asked to travel with me in the emergency vehicle, but he was told he couldn't as he was not a blood relative. I would probably had protested had I been more lucid. I remember thinking the EMT's hand I was holding onto for support was Bruce until I felt his elbow and found them too rough to be Bruce's. The emergency vehicle didn't have any trouble getting to or leaving the campground and thankfully the trip was uneventful.

At the emergency room I was admitted while a nurse named Fawn supervised. An IV had been attached to my left arm to replenish fluids and blood must have been drawn at some point although I don't remember that. I do remember Fawn commenting, when hearing the various things I was reported talking about, that I must have overdosed on television. I think an overdose of the Internet is more likely. Later I was taken to other rooms for a chest x-ray and an MRI. Afterward I was returned to a stall to wait for the attending Doctor.

Dr. Mongue told me the only thing they found wrong with me was low potassium in my blood and I was given a huge white pill, usually given to race horses, that they had to break up for me to take. Later after Bruce arrived at the hospital and I was able to see him, the nurse came in and asked if I wanted to go. I was awake and felt well enough to go, but Bruce did ask that they give me a sedative for the ride home. I remained conscious until we were on the Ferry back to Vashon.

Since my visit to the emergency room I haven't exhibited any similar behavior. I saw my regular doctor on the following Monday, who insisted the hospital should not have released me as soon as they did, suggesting that he'd have preferred I was observed for twenty-four hours. He set up an appointment for me with the Swedish Neurological Specialist Clinic. I met with the Neurologist on MLK day, who unfortunately couldn't give me any sort of diagnosis as the films from St. Joseph's had not been forwarded to her. In the meantime, I've been receiving bills for all the medical visits and with no insurance or current income, I am quite stressed to pay these bills.

The Neurologist said the next procedure I needed was an EEG to see if I have any impairment to my brain, but I am unable to schedule this with Swedish until I am approved for their charity program. Perhaps the straw that may break this camel's back is my charity application was returned by the post office because I'd copied the address wrong. Last Tuesday I visited Social and Health Services in White Center to apply for medical assistance and was given no promises and more paperwork, as well as a psychiatric evaluation to schedule.

I am very bewildered and stressed in sorting all this out. While I remain lucid and aware without and apparent relapse, I have been experiencing emotional highs and lows that seem out of character for me, but Bruce says this was also happening last fall. I haven't included much of the delusional thinking I was experiencing in this post, just because it doesn't make much sense, but I have been writing it down in order to attempt some resolution for my own sanity.

I don't know what I'm going to do about the bills and feel very helpless having to rely on the bureaucracies of government and charity assistance programs. The only thing I can hope for is to keep my sense of humor (thus the reference at the beginning of this post to Lewis Carroll). I am very grateful for Bruce's support in this ordeal and ask for all your indulgence for sharing this difficult news.




(9 comments) - (Post a new comment)


[info]daisydumont
2009-02-01 07:13 pm UTC (link)
i'm so sorry to hear about this! how scary and distressing. i hope your doctor can ultimately figure out what happened and prevent it from happening again.

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[info]volpane
2009-02-02 12:37 am UTC (link)
I sure hope it is nothing serious. At this point I'm counting it all up to PTSD or Post Traumatic Stress Disorder, although I don't think my history really accounts for anything this extreme. The potential for it to be something physical is much more distressing. Thank you for your concern.

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[info]inishglora
2009-02-01 09:18 pm UTC (link)
Nathan, this is disturbingly like my SO's first round with kidney failure. That experience and the lead-up to his hospitalization is burned into my memory. Did they check your creatine levels? Did they check for kidney function? The slow response time, the incontinence, the potassium imbalance all make me wonder if your kidneys are in trouble.

For your sake I hope it's not what it sounds like to me. Be well.

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[info]volpane
2009-02-02 12:47 am UTC (link)
As I suggest to daisydumont, I'm holding out for PTSD or something psychological, rather than physical. A lowered potassium level can mean a lot of things and my mother mentioned a neighbor of hers ended up in the hospital with a similar initial diagnosis. My doctor did run blood tests for kidney function and I will have to ask about creatine levels. I will be talking to him again this next week, so thank you for the suggested question. The Neurologist I spoke with works with people with Multiple Sclerosis and I truly hope this is not the case with me as I knew of three people who lived with that in my childhood who suffered with varying physical disabilities. Perhaps the most disturbing thing is having to wait for doctors, et al, to communicate and respond.

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[info]drindod
2009-02-02 02:35 am UTC (link)
Oh my. I am so glad that you were taken to the ER - severe hypokalemia can be very dangerous (and it sounds like you were very symptomatic to say the least). I can imagine how distressing this has been/still is for you and Bruce. I hope that you will soon be able to find out more details in regards to the possible cause of what might have brought this situation on.

I can relate to your concern about not being able to afford current treatment and therefore putting off necessary tests, but you might want to go ahead with the EEG regardless of waiting for possible charity approval (it may take a while before you hear back from them). Your health is more important than medical bills, and you need to know what is happening with you. Try not to worry about bills and financial matters. Swedish is quite reliable with their charity program. When I needed an emergency ct-scan (which turned out to be absurdly expensive) 2 years ago, I had very little income and was without insurance. I applied for charity assistance and received 100% eligibility. It's just such a headache having to gather all the required paper-work (from bank statements to other current bills), have them copied, and mailed out.


Will you be needing regular follow-ups with doctors and/or specialists? Have they told you to take potassium supplements?

Do you need any help with anything? (Please don't hesitate letting me know if there's something I could be any help with).



I know it's practically impossible, but try not to worry (too much). Adding more stress will only make you feel worse, mentally and physically. Put any financial matters aside and concentrate on your health, you will get through this.


Best wishes to you dear chap.

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[info]volpane
2009-02-03 04:46 am UTC (link)
Thank you for your support and concern, Trinity. I am doing my best not to worry needlessly, but as you point out that can be difficult at best. I have not been told to take supplements yet, but I have been more conscious of making sure I am eating plenty of foods containing potassium. One thing I didn't mention is that while we were staying at the cabin I was drinking much more water than I normally do because the air in the cabin was very dry with a forced air heater and the fire place. I don't think the low potassium was dietary per se, but could have been caused by the excess water flushing my system. I am hoping it is not a sign of something more serious.

Thank you also for your offer of help. Currently I am able and healthy, as much as always. As you point out, filling forms for assistance can be a lot of work, but so far I am getting these things done, but I will not hesitate to ask for assistance should that become necessary. I will be talking to my Doctor this week so I will make note of any positive news I get.

BTW, I love your nurse doll. That is very cute and made me smile. {{{HUG}}}

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[info]barbarakelley
2009-02-02 10:09 pm UTC (link)
wow--that sounds scary--both the symptoms and the bills. I hope you can get the medical assistance ASAP, as well as a diagnosis.

My thoughts and prayers are with you.

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[info]volpane
2009-02-03 04:50 am UTC (link)
Thank you, Barbara. I hope your back is doing better. I have kept you in my prayers as well. Thank you for continuing to post. I love reading your stories, you always manage to find something sublime in the most ordinary experiences.

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[info]sphinx_n_herhat
2009-02-14 09:36 am UTC (link)
I didn't see this until tonight. And then the follow-up post was the first one I saw. And I'm going "WHAT??" Oh Nathan, this sounds awful. I'm so glad you have Bruce in your life to be there close and paying attention. Good luck on those test results. Nancy could probably relate in a deeply personal way to the frustration of tests and waiting and paperwork. You might drop her a line if you want to vent to somebody who knows firsthand what you're going through.

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